March
2003 -
Return to
Newsletter Index
In this
issue, you will find:
1.
Company Progress
2. What’s next?
3. Why some beers claim to
be Gluten-Free
4. Monthly Questions
5. Housekeeping
We
hope you enjoy following our journey
through the world of innovation and
great beer.
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Company Progress
Top of Page
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We recognize that it has been a while
since we have sent information about our
progress. We appreciate your patience
and support. And yes we are still moving
forward with commercial production. Over
the last several months we have been in
discussions with a company that
presently owns a brewery and is
interested in the opportunity of
producing gluten-free beer. While the
talks have been going well in general,
as with all negotiations there are some
points of contention. For instance, as
celiacs we are always thinking about the
rest of us and feel there is a need to
consistently act on behalf of the celiac
community. They have been fairly good at
researching the issues surrounding
celiac disease, but it is clear that
technical knowledge does not easily
translate to intimate knowledge of the
disease. Especially as it relates to the
psychological components associated with
living (or coping) with this disease on
a daily basis. This lack of
understanding has become clear in
reviewing some of their strategic plans
and frankly, it concerns us. With this
in mind, we assure all of you that we
will not enter into a partnership with
any company unless we can be assured
that the best interests of the celiac
community are to be taken into account
in every strategic and tactical
decision.
While we feel confident that we can
overcome these concerns, we are fully
prepared to move forward if we cannot
come to an agreement. Therefore, we
believe that an agreement would be good
for all parties (including you), but our
success is not dependent on an
agreement. The speed of discussions have
been increasing so we should know one
way or another fairly soon. We will send
more detailed information once we have
an agreement in place. We were asked to
refrain from releasing certain
information until an agreement is
finalized.
We
attended the Healthy Villi, Boston
Chapter, Support Group meeting on
February 2nd. Even though the weather
was lousy, the meeting was a great
success (over 200 people) and the
organizers and volunteers should be
acknowledged for the incredible job. We
offered samples of the blonde ale and
pale ale, with great accolades. As was
the case with the Gluten Free Living
Conference, we had couple bottles left
over that were donated to the Celiac
Disease Research Center at the
University of Maryland. I believe we
raised $115 for the Center. On behalf of
the celiac community we thank all those
that made donations.
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What’s next?
Top of Page
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Hopefully we can quickly come to a
partnership agreement and start
production and distribution of
gluten-free beer. As mentioned above, we
will send out more information as soon
as we know. Rest assured beer is on the
way.
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Why some beers claim to be
Gluten-Free
Top of Page
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We receive many emails asking about
whether certain barley beers are safe or
not. Some even forwarded emails from the
breweries supporting the claim or in one
case we received an actual test result
showing that the gluten levels were
below the World Health Organization’s
standard levels.
These claims by breweries clearly show
that they do not understand the
technical issues associated with celiac
disease. Barley does not contain the
protein gliadin; it contains hordein,
which is also a toxic protein to celiacs.
Due to this situation, it is not
surprising that some tests show low
levels of gliadin (which is what they
test for). At this point in time there
are no lab tests for hordein and it has
been shown that gliadin tests are highly
unreliable. Therefore it is clear that
breweries do not understand the issue at
hand.
Does this mean that all beers are toxic
to celiacs? Yes and no. There may be
some beers that some celiacs can drink,
but there are celiacs that cannot drink
any beers. The point is that, once
again, we need to know more about the
issues than the manufacturers and cannot
take any information at face value. So,
if any brewery tells you that their beer
is gluten free ask them if they tested
for gliadin or hordein? Obviously they
can only say they tested for gliadin,
which doesn’t help us determine its
toxicity.
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Monthly Question(s) Top of Page
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Since we get quite a few questions from
our great supporters that seem to be of
interest to others, we decided to
dedicate a section of our newsletter to
answer some of your more frequent
questions.
Q:
Your website says that you will be in
production early in 2003. Why is it
taking so long?
A:
Unfortunately, there is no easy answer
to this question. There are two main
reasons. One, as we are treading into
uncharted technical areas we have come
across several technical issues that no
one ever anticipated (this includes some
of the foremost brewing experts in the
country). We have had to develop an
entirely new way of brewing beer since
the traditional methods do not work.
This has taken more time than
anticipated. Two, the state of our
economy has clearly played a major role
in our difficulty to raise the necessary
funds. Because of this scenario, we have
had to change our strategy. For
instance, partnering with another
brewery was not part of our original
strategy, but due to the economy, we
have had to reconsider this option. Just
to be clear, we will not produce a beer
that is subject to cross contamination
or other gluten concerns. We appreciate
your patience and we hope you can
appreciate the technical obstacles we
have had to overcome to bring this
product to market.
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HouseKeeping Top of Page
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Cheers,
Kevin Seplowitz
President